My Secret Isn’t So Secret Anymore

For Hyperhidrosis Awareness Month this year, I had the amazing opportunity to share my story of living with Hh on a larger scale. The International Hyperhidrosis Society approached me earlier this year to ask if I would consider being a part of their Awareness Month campaign and tell my #HhStory. Although I am usually pretty secret about my condition, I decided to take the leap and trust that a video like this could help others living with Hh and spread awareness and understanding. It’s always important to me to portray Hh as NOT just a little sweat. The video really captures the struggles I’ve faced and the obstacles I’ve had to overcome to get through each and every day. My story is just one of many from millions of other Hh sufferers all over the world. You are not alone. We are in this together.

So, without further ado, here’s my story.

So, I guess my secret isn’t so secret anymore…and that’s okay.

Thank you to the International Hyperhidrosis Society for this opportunity and to my husband and mom who joined me to share their experiences of having someone with Hh in their lives.

To all my family and friends – thank you for your never-ending love and support ❤

Caryn

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New Product Review: Carpe Antiperspirant Hand Lotion

Hi all,

I was recently introduced to a brand new product called Carpe. It is an antiperspirant hand lotion for sweaty hands! I received a sample of this product in the mail a few weeks ago and immediately felt results. I was recommending this product the day I tried it and I am happy to write a review for my blog!

tube

What’s great about this product is that it is a non-invasive solution for sweaty hands. It’s something you can take on the go and use as you need it. It can be used daily and will keep your hands sweat-free for hours (4+).

Carpe is an opaque white lotion with a pleasant scent. It smells like eucalyptus and mint. One of my first observations when opening the lotion was that it had a mild scent and didn’t smell like medicine. I feel like a lot of similar lotions don’t have as nice of smell.

Carpe should be applied to clean and dry hands.  You apply a pea-sized amount to your palms and rub together for 15 seconds. The lotion is pretty tacky when going on, but it disappears within the 15 seconds and leaves no residue. I was able to resume typing on my computer keyboard after the 15 seconds and did not need to rinse my hands. The lotion sunk in for a while and my hands were dry.

I find this product especially good for people with HH who have not yet explored other treatment options, children with HH, and people who have occasionally sweaty hands.  For people who  haven’t explored any other treatment options, a lotion is the perfect way to start. Carpe is sold over the counter and is very affordable. One tube costs $14.95 and will last for 1.5 months. For children with HH, I think a lotion is absolutely the way to go. Since HH is hereditary, I’ve given a lot of thought to how I will approach HH with my future children if they get my HH gene. I would not want to put them through Iontophoresis or give them Robinol until much later. Since the lotion is topical and can be reapplied throughout the day, it’s a great tool for kids at school and during after-school activities. Same goes for people who do not have HH, but have occasionally sweaty hands. The lotion is great for them because they won’t need the more intense treatments like Ionotphoresis or Robinol.

Last week, I had the pleasure of speaking with the co-creater of Carpe, David Spratte. He started working on this product when he was a senior in high school because of his frustration with sweaty hands. Now, a junior at the University of North Carolina, his product is on sale and ready to help the HH community and more! I was quite impressed to learn how much David had accomplished at such a young age and I was inspired by his story. I love that this product was created by someone who was struggling with sweaty hands himself.  He took his experiences and knowledge of sweaty hands to create a product he knew would work. David uses Carpe every day.

Something unique and special about Carpe is that long-term sweat reduction is possible if it is used regularly. David says that based on efficacy studies, 60% sweat reduction is achieved long-term if used once a day. Carpe is FDA-certified and non-irritating, so it is safe to use daily. Additionally, I was very happy to learn from David that Carpe also works on sweaty feet and foreheads. If you use the product on your feet, wait 10-15 minutes before putting on a shoe or sock to ensure the lotion sinks in.

Last, I would like to mention how much I love the name of this product. Carpe is short for Carpe Diem – Sieze the Day. David uses ‘Sieze the Moment’ on his packaging. Having this association with the lotion completely correlates to what I mention in my blog: Don’t let HH limit you and what you want to do in life. This lotion can provide  much needed relief as you face challenging and potentially embarrassing daily situations. Whether it be a handshake or highfive, playing sports or musical instruments, or simply taking a test with paper and pencil, Carpe can be a solution for you.

Please let me know if you have any questions about Carpe and please check out their website!

Thanks for reading,

Caryn

 

100th Blog Post – Three Years of Just a Little Sweat

Today is a very special day for Just a Little Sweat as I am celebrating two major milestones in the life of this blog. It has been exactly 3 years since I wrote my first post for Just a Little Sweat. Today, I share my 100th!!

3 years of Just a Little Sweat

As I sit here at my desk, writing this entry with the help of my favorite yellow towel and fan, I wanted to first say how thankful I am for all of your support in Just a Little Sweat. If you take a look back at my first post on December 5, 2011, I write about not being sure if I wanted to make this blog public. Talking about HH is really scary, even if it’s over the internet! However, you all accepted me and this blog with open arms and have provided as much support to me as this blog may have supported you. Over the course of 3 years writing for Just a Little Sweat, I have met countless people in cyber space – people from all over the globe and all walks of life. I am honored to have met you, to have learned your stories, and to have had the opportunity to respond to your all your comments and emails. Thank you for your positive feedback, your strength and optimism in the HH community, and for lending an open ear to my stories.

A lot has happened in my life in the 3 years since starting this blog. Let’s take a look back at some of my posts as I remember the highlights:

To celebrate 3 years, I looked back at my 100 posts and chose my top 5. I hope you enjoy them as much as I do!

Caryn’s Top 5 Favorite Posts from Just a Little Sweat

5. The HH Super Villain??
I love it when HH appears in pop culture. It’s not proven that the character has HH, but I’m pretty sure he does 🙂 I’m cheating by linking this additional post, but I can’t resist. Check out another HH reference in pop culture in a Luann Comic.

4. What HH has taught me
Every now and then, I return to this post to remind myself of everything I’ve gained because of HH – patience, strength, courage, tolerance and pride in myself.

3. I posted my Blog Site on Facebook
Writing this entry and actually following through with posting it on Facebook was a huge step in my life. I’m proud of how I brave I was in this moment and still think my letter to the Facebook community provides a great introduction to awareness of HH.

2. Sweat and Chicken Wings
This post was a response to a question about my dating life with HH and how coincidentally, my fiance has secondary HH when he eats spicy food like chicken wings. I write: “HH is a big part of your life and a big part of who you are, whether you like it or not. The right person for you is going to love you for everything you are.”

1. How My Blog Got Its Title
I just posted this entry this week, but it is my favorite. I remembered my initial goals for this blog were to help connect the HH community and explain HH in a way that was relatable to people with and without HH. Advocating universal awareness of HH has always been important to me. Thank you for giving me courage to advocate for our community and for being advocates yourself!

Although the time seemed to fly by, so much has changed and I am very happy to be where I am now in life. I’m looking forward to many more years of sharing my stories with you and listening to yours! Thank you again for your support and as always, for reading!

All my best and Happy Holidays,

Caryn

My First Experience with the Iontophoresis Device

A couple of months ago I was offered an opportunity to try an Iontophoresis machine for my Hyperhidrosis. The makers of the R.A. Iontophoresis device loaned me a prescription machine- the MD-1a Galvanic Unit! I have been working with Bill Schuler, R.A. Fischer president and long-time supporter of the International Hyperhidrosis Society, over the phone and via email for tips and coaching and updating him of my progress.

What is Iontophoresis, you ask?

Defined from the R.A. Iontophoresis website: “In cases where antiperspirants are not effective, a physician may recommend “Tap Water Iontophoresis” for treatment of palmar or plantar hyperhidrosis. In medical terms, iontophoresis is defined as the topical introduction of ionized drugs into the skin using direct current (DC).”

My first experience with this machine caused a lot of anxiety. I opened the case and saw a lot of wires and many booklets and sheets of paper with instructions.

Francis and I read through all the directions, we set up the machine and prepared the trays with tap water. This being the first time, it took us about an hour before we actually turned the machine on. I’m glad we went through everything thoroughly because I felt that the machine could be dangerous to me if something was set up incorrectly. Francis used to work for the American Red Cross and I was happy that his medical instincts took over as he carefully made sure everything was hooked up properly. He let me focus on calming my nerves. I already knew the general idea of the device as I had tried Iontophoresis about 10 years ago with no success, but this machine looked a lot more intense.

I opened the case to find that it conveniently slides apart to become two tap water trays. One metal plate rests in each tray and a cloth goes on top of the plates to avoid any direct contact with the skin. Each plate is connected by a wire to the main device where you change the level of milliamperes. The instruction booklet said that you should aim for setting the device to 12-18 milliamperes.

Finally, after making sure everything was hooked up correctly, I was ready for my first test with the device. Each of my hands rested in a tray on top of the cloth covering the metal plates. We were ready to turn the machine on.

Although I knew the machine was safe, I couldn’t help fearing that I would somehow be electrocuted and pass out once the power button was switched on. I could feel knots in my stomach and my breathing was fast. I was really nervous.

During the first treatment, Francis was responsible for working the device and changing the level of milliamperes. He counted to three and he turned the machine on.

Phew- I was okay!

Francis gradually increased the milliaperes to 12- we didn’t go any further than that on this first try.

What I noticed most was vibration. The vibration was pretty severe during my first try- vibrating my fingers, palms, wrist, and half-way up my forearm. If the sensation was getting to be too much, I asked Francis to lower the milliamperes slightly.

The vibration sensation was not painful, just a little uncomfortable.

After ten minutes, it is instructed to gradually decrease the milliamperes to 0, reverse the charge, then gradually increase again between 12-18. This lasted for another 10 minutes, and then my treatment was done for the day!

I was happy to find that the treatment wasn’t painful and that I felt safe. The treatment takes a lot of time, but I was able to watch TV during it. Watching TV also helped keep my mind off of any discomfort I felt with the vibration sensation.

I was also relieved that Francis was with me for my first treatment. He was very supportive and protective of me and made sure I was feeling okay.

After the first treatment was over, he wanted to try the machine to see what I was feeling! I let him try it very briefly, and we only went up to about 6-7 milliamperes. He could feel the vibrations from the plates.

This really showed me how much he supports me and that he was willing to step into my shoes, so to speak. His actions spoke largely about his character.

Stay tuned for another entry about my other treatments with the Iontophoresis device!

Best,

Caryn

Carrying case for the R.A. Fischer Iontophoresis device. The case comes apart to become two tap water trays for the treatments.

Carrying case for the R.A. Fischer Iontophoresis device. The case comes apart to become two tap water trays for the treatments.

The milliamperes are adjusted on this device during treatments.

The milliamperes are adjusted on this device during treatments.

During my first treatment, I treated both of my hands at the same time because Francis was adjusting the milliamperes on the device.

During my first treatment, I treated both of my hands at the same time because Francis was adjusting the milliamperes on the device.

 

Hyperhidrosis Genetics Study

This past year, I participated in a study conducted by the Albert Einstein College of Medicine on the genetics of Hyperhidrosis.

In today’s e-newsletter from the International Hyperhidrosis Society, I learned of some findings from the study. You can read the article HERE.

If you are living with HH, I encourage you to contact the College of Medicine and participate.

My experience with them was very positive. I was mailed a free kit that included a HH questionnaire and supplies for DNA samples (mouthwash samples).

After the questionnaire was complete and mouthwash samples were collected, I mailed the kit back to the Albert Einstein College of Medicine, free of charge.

It is important for your family members to also participate in the study whether they have HH or not because genetics and heredity are being tested.

Thanks for reading,

Caryn

 

I was featured by the International Hyperhidrosis Society!

I wanted to share some exciting news!

Today I was featured in an article in the International Hyperhidrosis Society eNewsletter! Sharing my HH story with others has been a really rewarding experience and I thank the International Hyperhidrosis Society for giving me the opportunity to share with so many of you!

Please click HERE to read the article.

The International Hyperhidrosis Society is a fantastic support site for people with Hyperhidrosis. They share a wealth of information including HH education, tips for coping, stories from others with HH, deals and discounts on sweat-helping products, research studies, treatment information, a comprehensive search for doctors, ways to get involved and more! I have had a really positive experience communicating with them in preparation for this article and always find their website helpful. Please check it out!

All best, and stay tuned for an entry about the Iontophoresis machine that was just donated to me from R.A. Fischer iontophoresis devices !

Caryn

 

It’s that time again…

This week in NYC, it has reached almost 80 degrees! Too hot for me already!

I’ve been really struggling with my work clothes and shoes. I need to be able to dress light, but not sweat through everything. Walking has already become a pain- wearing flats without socks. I am slipping, squishing and sliding. Today, I was smart and am wearing my cotton ped socks with my flats.

I caved this week and bought another fan for my desk at work. This one I put on the floor, directed at my feet.

Now I have one fan on my face and hands and one on my feet. Hopefully this will help keep my entire body cool this summer!

I am definitely considering moving somewhere where it is in the mid 50s all year round. Suggestions?

Good luck out there, and keep drinking water!

Best,

Caryn