HH and heredity

My Secret Isn’t So Secret Anymore

/ carynjoan / 1 Comment

For Hyperhidrosis Awareness Month this year, I had the amazing opportunity to share my story of living with Hh on a larger scale. The International Hyperhidrosis Society approached me earlier this year to ask if I would consider being a part of their Awareness Month campaign and tell my #HhStory. Although I am usually pretty secret about my condition, I decided to take the leap and trust that a video like this could help others living with Hh and spread awareness and understanding. It’s always important to me to portray Hh as NOT just a little sweat. The video really captures the struggles I’ve faced and the obstacles I’ve had to overcome to get through each and every day. My story is just one of many from millions of other Hh sufferers all over the world. You are not alone. We are in this together.

So, without further ado, here’s my story.

So, I guess my secret isn’t so secret anymore…and that’s okay.

Thank you to the International Hyperhidrosis Society for this opportunity and to my husband and mom who joined me to share their experiences of having someone with Hh in their lives.

To all my family and friends – thank you for your never-ending love and support ❤

Caryn

New Product Review: Carpe Antiperspirant Hand Lotion

/ carynjoan / 9 Comments

Hi all,

I was recently introduced to a brand new product called Carpe. It is an antiperspirant hand lotion for sweaty hands! I received a sample of this product in the mail a few weeks ago and immediately felt results. I was recommending this product the day I tried it and I am happy to write a review for my blog!

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What’s great about this product is that it is a non-invasive solution for sweaty hands. It’s something you can take on the go and use as you need it. It can be used daily and will keep your hands sweat-free for hours (4+).

Carpe is an opaque white lotion with a pleasant scent. It smells like eucalyptus and mint. One of my first observations when opening the lotion was that it had a mild scent and didn’t smell like medicine. I feel like a lot of similar lotions don’t have as nice of smell.

Carpe should be applied to clean and dry hands.  You apply a pea-sized amount to your palms and rub together for 15 seconds. The lotion is pretty tacky when going on, but it disappears within the 15 seconds and leaves no residue. I was able to resume typing on my computer keyboard after the 15 seconds and did not need to rinse my hands. The lotion sunk in for a while and my hands were dry.

I find this product especially good for people with HH who have not yet explored other treatment options, children with HH, and people who have occasionally sweaty hands.  For people who  haven’t explored any other treatment options, a lotion is the perfect way to start. Carpe is sold over the counter and is very affordable. One tube costs $14.95 and will last for 1.5 months. For children with HH, I think a lotion is absolutely the way to go. Since HH is hereditary, I’ve given a lot of thought to how I will approach HH with my future children if they get my HH gene. I would not want to put them through Iontophoresis or give them Robinol until much later. Since the lotion is topical and can be reapplied throughout the day, it’s a great tool for kids at school and during after-school activities. Same goes for people who do not have HH, but have occasionally sweaty hands. The lotion is great for them because they won’t need the more intense treatments like Ionotphoresis or Robinol.

Last week, I had the pleasure of speaking with the co-creater of Carpe, David Spratte. He started working on this product when he was a senior in high school because of his frustration with sweaty hands. Now, a junior at the University of North Carolina, his product is on sale and ready to help the HH community and more! I was quite impressed to learn how much David had accomplished at such a young age and I was inspired by his story. I love that this product was created by someone who was struggling with sweaty hands himself.  He took his experiences and knowledge of sweaty hands to create a product he knew would work. David uses Carpe every day.

Something unique and special about Carpe is that long-term sweat reduction is possible if it is used regularly. David says that based on efficacy studies, 60% sweat reduction is achieved long-term if used once a day. Carpe is FDA-certified and non-irritating, so it is safe to use daily. Additionally, I was very happy to learn from David that Carpe also works on sweaty feet and foreheads. If you use the product on your feet, wait 10-15 minutes before putting on a shoe or sock to ensure the lotion sinks in.

Last, I would like to mention how much I love the name of this product. Carpe is short for Carpe Diem – Sieze the Day. David uses ‘Sieze the Moment’ on his packaging. Having this association with the lotion completely correlates to what I mention in my blog: Don’t let HH limit you and what you want to do in life. This lotion can provide  much needed relief as you face challenging and potentially embarrassing daily situations. Whether it be a handshake or highfive, playing sports or musical instruments, or simply taking a test with paper and pencil, Carpe can be a solution for you.

Please let me know if you have any questions about Carpe and please check out their website!

Thanks for reading,

Caryn

 

Will my kids have HH?

/ carynjoan / 10 Comments

I’m often asked if I’m worried about passing Hyperhidrosis on to my kids. HH runs in my family, so I know that there is a pretty good chance of passing it on.

I’ve given this a lot of thought for many years. In the past, I was concerned about passing it on because I know the difficulties of HH first hand and I don’t want my children to suffer through it. Children especially have trouble with HH in school and social activities. Years ago, a part of me thought my future children would be angry with me for passing it on.

However, after more thought and discussion with family members, I can say that although there is a high chance of passing HH on to my kids, it doesn’t deter me from wanting to have my own children. I have always wanted to be a mom.

In fact, if my children are born with HH, I will be incredibly well-equipped and be their biggest support. I will be able to share coping techniques and be knowledgeable about treatments. I will be a huge resource and am confident I will be able to help them.

 

Dry Grip No Sweat Lotion Interview

/ carynjoan / Leave a comment

A couple of months ago, I suggested some over the counter treatment options for my younger cousin who also has HH. He is in middle school now and has had HH for his whole life. Out of the options I suggested, he chose to start with a lotion called Dry Grip No Sweat.

He is having great success with the product so I thought it would be a fun idea to interview him about it and his experiences with HH. A big thank you goes out to him for helping me with this post!

Here’s what he had to say:

Caryn: What do you think the hardest part of having HH is?
Cousin: I think the hardest part of HH is having to deal with it all the time. I mean, unless it was the winter, usually my hands were sweaty. I personally had a really tough time getting used to it, and even now. I just want it to be done with.

Caryn: What difficulties do/did you find in school with HH?
Cousin: It is quite hard to cope with it at school, like when you accidentally touch someone, or when you have to pass something around and you get it really sweaty, or trying to hold a pencil but your hand keeps slipping off, it becomes annoying, and sometimes embarrassing.

Caryn: Do/did you have any difficulties with HH outside of school?
Cousin: I absolutely had troubles with it outside of school. Trying to do sporting activities was a bust, I couldn’t really touch anyone, and eventually I started to get stressed. Stressed that it wouldn’t go a way, no matter what I tried to do about it.

Caryn: How often do you apply the lotion and how does it make your hands feel?
Cousin: I apply the lotion every morning on weekdays, and at first it feels like glue because it’s sticky, but that only last for about 5 seconds. Other than that, I don’t feel it whatsoever, and often forget I put it on that morning.

Caryn: How successful do you think it has been?
Cousin: I believe it has worked quite well, but I like to think of it as brushing your teeth. It’ll only work if you consistently do it, as for most things. Now even though I’m not applying it on weekends, I just do that so my hands don’t get used to it, so I can use the same lotion for longer.

Caryn: How has your day to day life changed since using the lotion?
Cousin: My day to day life has changed for the better, no doubt about it. I hardly notice my hands sweating, and usually that’s after gym in school. I no longer have the problems I used to have in school, and I much enjoy it. It really stinks to have HH, but if you don’t do anything about it, it won’t go away.

Thanks for reading,

Caryn

 

 

HH and Heredity

/ carynjoan / 1 Comment

Hi all,

I always knew that Hyperhidrosis ran in my mom’s side of the family. Her sister (my aunt) was born with it and so were her two boys (my cousins). I was surprised to hear earlier this year that a cousin on my dad’s side of the family was recently diagnosed with the condition.

My dad told me about my cousin’s diagnosis and I reached out to her. She told me she went to a doctor and was prescribed a product called Hypercare. I had never heard of this treatment before but looked it up to find that its active ingredient is Aluminum Chloride. She is having success with this product!

I am thankful that I can talk to my family members about Hyperhidrosis openly and recently helped out my younger cousin on my mom’s side who hadn’t tried any previous treatments. After sending him and his mom a compiled list of some mild treatment options, he decided to go with an over the counter hand lotion. He is having a lot of success with this product so far! It’s called Dry Grip and can be found on Amazon.

HH runs in my family, but so does support. We are all very willing to listen and talk about HH and help each other out.

Best of luck,

Caryn

It’s not all blue skies

/ carynjoan / 7 Comments

Hi All,

I sincerely apologize for not posting for over 2 months. Life quickly got very hectic as the semester started- both in work and in my personal life.

If I didn’t have time to post, you can only imagine the trouble I had finding time to keep up with Iontophoresis. I missed way more treatments than I am happy to admit, and so of course, my sweating has returned.

The sweating is not as bad as what it was before Iontophoresis, but it is still present. No matter what, HH is in my genes. It’s in my DNA. Without treatment, I will always sweat.

I feel so angry with myself. I finally found a tool that helps my HH, and I am not taking advantage of it. Yes, I’ve been really busy, but I know I could have found more time than I felt I had.  I’m blaming only myself.

When I think about my situation, my mood starts spiraling downwards. Mostly I am just angry with myself.

Holidays are coming up, and I will be able to take more time off from work. I’m definitely bringing the Iontophoresis device home and will be using it every other day. I’m going to start the initial treatments again.

Hope all is well with you and Happy Holidays!

Caryn

Luann Comic- Hyperhidrosis

/ carynjoan / 3 Comments

Hi All,

This weekend, the popular Luann comic strip mentioned Hyperhidrosis! Thank you to my Aunt (who also has HH) for bringing this comic strip to my attention!

I am so happy and surprised that HH is mentioned, and by name too! I feel like this comic strip just made HH history. So many people read the Luann comic. It was my favorite comic strip growing up!

Greg Evans (Luann creator) was just able to reach thousands about HH. I am so curious what the response is! Thank you!

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All best,

Caryn

Hyperhidrosis Genetics Study

/ carynjoan / 2 Comments

This past year, I participated in a study conducted by the Albert Einstein College of Medicine on the genetics of Hyperhidrosis.

In today’s e-newsletter from the International Hyperhidrosis Society, I learned of some findings from the study. You can read the article HERE.

If you are living with HH, I encourage you to contact the College of Medicine and participate.

My experience with them was very positive. I was mailed a free kit that included a HH questionnaire and supplies for DNA samples (mouthwash samples).

After the questionnaire was complete and mouthwash samples were collected, I mailed the kit back to the Albert Einstein College of Medicine, free of charge.

It is important for your family members to also participate in the study whether they have HH or not because genetics and heredity are being tested.

Thanks for reading,

Caryn

 

I was featured by the International Hyperhidrosis Society!

/ carynjoan / 14 Comments

I wanted to share some exciting news!

Today I was featured in an article in the International Hyperhidrosis Society eNewsletter! Sharing my HH story with others has been a really rewarding experience and I thank the International Hyperhidrosis Society for giving me the opportunity to share with so many of you!

Please click HERE to read the article.

The International Hyperhidrosis Society is a fantastic support site for people with Hyperhidrosis. They share a wealth of information including HH education, tips for coping, stories from others with HH, deals and discounts on sweat-helping products, research studies, treatment information, a comprehensive search for doctors, ways to get involved and more! I have had a really positive experience communicating with them in preparation for this article and always find their website helpful. Please check it out!

All best, and stay tuned for an entry about the Iontophoresis machine that was just donated to me from R.A. Fischer iontophoresis devices !

Caryn

 

(I know it) Like the back of my hand

/ carynjoan / Leave a comment

I use the back of my hands a lot. You might find this strange or confusing, but it’s another coping mechanism.

The back of my hands sweat less. The tops of my fingers will sweat occasionally when my HH is very strong and opposite the palm area (above the wrist and below the knuckles), there is no sweat.

For my job, I have to hang a lot of posters to advertise concerts. I always smooth them down with the backs of my hands. I can’t do it with the front of my sweaty hands or the ink will run!

On the subway, I will sometimes balance myself by pressing the back of my hand to the rail. This works for the most part. I’m really good at balancing.

Side note- I truly think I have better balance from having HH on my feet. Walking with sweaty feet in sandals requires a lot of balance!

If I ever really need to be in close proximity to people where my hands may brush them, I make sure it’s with the back of my hands.  Fist bump instead of hand shake?

I tend to keep my palms down, so people are only seeing the back (tops) of my hands. Less glistening in the light!

At a bar, I will hold onto my drink most of the night so only the back of my hands are showing. Also, if you need to shake someone’s hand unexpectedly, you can claim that the sweat is the condensation from your glass. I do this a lot, actually. More lying- I guess this should have been in my “lying” post.

Does anyone else with HH use the back of their hands?

Caryn