Hyperhidrosis Genetics Study

This past year, I participated in a study conducted by the Albert Einstein College of Medicine on the genetics of Hyperhidrosis.

In today’s e-newsletter from the International Hyperhidrosis Society, I learned of some findings from the study. You can read the article HERE.

If you are living with HH, I encourage you to contact the College of Medicine and participate.

My experience with them was very positive. I was mailed a free kit that included a HH questionnaire and supplies for DNA samples (mouthwash samples).

After the questionnaire was complete and mouthwash samples were collected, I mailed the kit back to the Albert Einstein College of Medicine, free of charge.

It is important for your family members to also participate in the study whether they have HH or not because genetics and heredity are being tested.

Thanks for reading,

Caryn

 

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I was featured by the International Hyperhidrosis Society!

I wanted to share some exciting news!

Today I was featured in an article in the International Hyperhidrosis Society eNewsletter! Sharing my HH story with others has been a really rewarding experience and I thank the International Hyperhidrosis Society for giving me the opportunity to share with so many of you!

Please click HERE to read the article.

The International Hyperhidrosis Society is a fantastic support site for people with Hyperhidrosis. They share a wealth of information including HH education, tips for coping, stories from others with HH, deals and discounts on sweat-helping products, research studies, treatment information, a comprehensive search for doctors, ways to get involved and more! I have had a really positive experience communicating with them in preparation for this article and always find their website helpful. Please check it out!

All best, and stay tuned for an entry about the Iontophoresis machine that was just donated to me from R.A. Fischer iontophoresis devices !

Caryn

 

(I know it) Like the back of my hand

I use the back of my hands a lot. You might find this strange or confusing, but it’s another coping mechanism.

The back of my hands sweat less. The tops of my fingers will sweat occasionally when my HH is very strong and opposite the palm area (above the wrist and below the knuckles), there is no sweat.

For my job, I have to hang a lot of posters to advertise concerts. I always smooth them down with the backs of my hands. I can’t do it with the front of my sweaty hands or the ink will run!

On the subway, I will sometimes balance myself by pressing the back of my hand to the rail. This works for the most part. I’m really good at balancing.

Side note- I truly think I have better balance from having HH on my feet. Walking with sweaty feet in sandals requires a lot of balance!

If I ever really need to be in close proximity to people where my hands may brush them, I make sure it’s with the back of my hands.  Fist bump instead of hand shake?

I tend to keep my palms down, so people are only seeing the back (tops) of my hands. Less glistening in the light!

At a bar, I will hold onto my drink most of the night so only the back of my hands are showing. Also, if you need to shake someone’s hand unexpectedly, you can claim that the sweat is the condensation from your glass. I do this a lot, actually. More lying- I guess this should have been in my “lying” post.

Does anyone else with HH use the back of their hands?

Caryn

Rings and HH

I wear rings every day. Usually, I wear my class ring from college- a classy one that gets a lot of comments from people.

You already know that HH causes my hands to swell to the point where I need to get a ring size larger than normal for my fingers.

What you don’t know is what happens when people want to look at my rings.

Many times, people will grab my hand and start admiring my ring.

With HH, this is highly uncomfortable. I don’t want them to notice my sweaty hands so I immediately take my ring off and hand it over to them to look at.

Anyway, I’m getting older…and one day I will hopefully be engaged and have a ring on my finger. Many women love when their engagement ring is looked at and show it off. Many friends and family don’t even ask to look at the ring, they just grab the Bride-to-Be’s hand to “ooh and ahh”.

This is going to suck for me. I don’t even know how I will handle it. I’m not going to take the ring off for the person to look at. This might be fine for other rings, but not an engagement ring.

Don’t get me wrong…I still want a ring. I’m a pretty traditional person when it comes to weddings. I am just imagining some uncomfortable situations in my future.

It’s sad that I need to think of this. Being engaged should be nothing but happy. It shouldn’t be awkward and uncomfortable.

Anyway, thanks for reading!

Caryn

Chocolate?

Today as I rode the subway, I saw a girl snacking on some chocolate covered candies. My hands were a sweaty mess at this point and I imagined trying to eat what she was eating. My thoughts in order: Impossible, Disgusting, Messy.

How have I never mentioned this before? I can’t eat chocolate anything when my hands are sweaty!

M&M’s? Forget it! I will have a colorful mess left in my hand.

What’s up with their tagline, “Melts in your mouth, not in your hand?”

These candies surely have not been tested by people with HH!

Maybe the candied shell is keeping the chocolate from melting, but it is giving me an unwanted multicolored palm.

The Brown Paper Bag

Today’s culprit was a brown paper bag containing a delicious burrito.

It was very hot today and my HH was acting up.

As I held the bag from the top, my hands deteriorated the paper.

So, I held it from the bottom.

This made the bottom of the bag so wet that it ripped open and threatened the safety of the burrito.

Don’t worry, we both made it back to work okay!

Plastic anyone?

🙂

Caryn Joan