My Secret Isn’t So Secret Anymore

For Hyperhidrosis Awareness Month this year, I had the amazing opportunity to share my story of living with Hh on a larger scale. The International Hyperhidrosis Society approached me earlier this year to ask if I would consider being a part of their Awareness Month campaign and tell my #HhStory. Although I am usually pretty secret about my condition, I decided to take the leap and trust that a video like this could help others living with Hh and spread awareness and understanding. It’s always important to me to portray Hh as NOT just a little sweat. The video really captures the struggles I’ve faced and the obstacles I’ve had to overcome to get through each and every day. My story is just one of many from millions of other Hh sufferers all over the world. You are not alone. We are in this together.

So, without further ado, here’s my story.

So, I guess my secret isn’t so secret anymore…and that’s okay.

Thank you to the International Hyperhidrosis Society for this opportunity and to my husband and mom who joined me to share their experiences of having someone with Hh in their lives.

To all my family and friends – thank you for your never-ending love and support ❤

Caryn

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Entire Medical Journal dedicated to HH

Last week, I received an email from the International Hyperhidrosis Society stating that an entire issue of the Dermatologic Clinics medical journal was dedicated completely to Hyperhidrosis! This is ground-breaking news and I wanted to learn more. The issue is found in October 2014, Volume 32, Number 4. It covers topics such as:

  • Prevalence of HH
  • Impact of HH on Quality of Life
  • Special Considerations for Children with HH
  • Topical Therapies
  • Iontophoresis
  • Botox treatments
  • Oral medications
  • ETS surgery
  • Emerging therapies
  • Resources for patients and sufferers
  • Incorporating diagnosis and treatment into Clinical Practice

You can purchase the entire issue or individual articles. This is a really exciting breakthrough for people with HH. The issue will be available to medical specialists and provide education on our condition and the latest treatments available! Just another big step in the right direction for universal awareness and understanding.

Tell Someone about HH- Challenge!

Hi All,

Now that you have some tips for telling people about HH, I present you with a challenge: Tell someone new about your HH this week!

Telling people about my HH has made me feel more comfortable in my own skin and has helped me cope with the emotional aspects of the condition.

I am less anxious when I go to rehearsals with my quintet because they know why I need to use a towel sometimes. I am less embarrassed and self-conscious as I sweat uncontrollably in the hot summer sun when I’m out with a friend because they know I can’t help it.

Now, I want to hear from you!

Please leave a comment about a time you told someone about your HH.

How did you do it?
What was their reaction?
How did you feel?
Did your relationship with that person change?
How is your relationship with that person now?

Good luck, and as always, thanks for reading!

Caryn

Oh yeah, I’m a flute player

So, I have been noticing that I rarely write anything about my flute playing in here.

Let me tell you a quick story.

I am in a woodwind quintet that performs all over the city.
In March 2012, we auditioned for MUNY (Music Under New York).
MUNY participants are able to reserve the best tip spots to perform in the subways.
Well, we won the audition!

We started playing in the subways this summer.

The evening before our first performance (which was in Union Square), I realized something I should have thought about a long time ago.

The subways are HOT. I have complained about the heat in my posts before, and other readers have commented on their heat as well. I have had some of my worst HH moments in subways!

I started freaking out- What did I do!?! Why did I intentionally do this to myself?!?
I was so upset with myself for not thinking this through.

The next day, we all played, and boy was it hot! But we all survived.

I brought a very absorbent towel with me, and that worked well. I keep that towel in my flute bag now, and use it every time I play. I use my music to fan my hands if necessary, and wipe my hands on my jeans.

My quintet and I have since then performed in Grand Central, Penn Station, Herald Square, and Columbus Circle. Each has been successful, and I am able to play my flute okay.

This past weekend in Columbus Circle, I became paranoid because people were looking over my shoulder (probably at the music) and my hands were dripping sweat. I hope they didn’t notice!

Also, my hands made the pads under my keys all sticky and moist. This gives an annoying sound when you move the keys. I hate feeling like I’m breaking my instrument every time I play 😦

For more info on my flute playing- www.carynfreitag.com

Stay strong out there- anything is possible, with a few alterations.

Caryn

Another Reaction to Glycopyrrolate

This one is not physical. This reaction is emotional.

After getting a glimpse of dry hands (or at least significantly less wet ones), then abruptly stopping the medication and becoming sweaty again, I am sad.  Having sweaty hands again after almost two weeks of being dry has been depressing. It is a let down that feels brand new. What a tease.

I feel like if I think about it too much, my outlook on life starts spinning out of control, leaving me a terrible feeling of the unknown in the pit of my stomach. I just have to shake the thoughts away because I can’t deal with it right now.

I am still afraid of going back on the medication right now because of my reaction to it. The plan is to speak to a doctor about it soon.

Good luck out there!

Caryn

Glycopyrrolate Week 2.5- WARNING

Please be careful with Glycopyrrolate for HH!

I ended up in the Emergency Room last week for severe pain in my side, below my ribs.

I had no idea what was wrong with me at the time, but I had difficulty standing upright!

The pain was originating near my kidneys, so I was checked for Kidney and Gall Bladder stones among other things. All tests were clear.

After a few days of pain, I realized I never took my medication into consideration. I was on this medication before, and never had such side effects.

However, when I looked at the paperwork, I realized that the side effects fit my symptoms.

My doctor says that since I have lost weight since the first time I was on the medication, there was a chance I would react differently to it.

Glycopyrrolate will slow the activity of your abdominal cavity and I guess it basically caused a blockage.

I was unintentionally ignoring my symptoms, thinking that a little bloating and loss of appetite wasn’t anything to worry about.

A few days and intense pain later, I realized these symptoms had been going on for almost a week!

I have stopped the medication, and added a ton of fiber to my diet. I am feeling so much better now, and have plans for starting the medication again with a new diet.

I will keep you posted.

Caryn