Hello!

Happy belated New Year! I apologize for the large gap in my entries. Life is as hectic as always and I’m here now to catch you up on my most recent adventures.

In December and January, I traveled to China with an orchestra to tour! It was an amazing, once-in-a-life-time experience filled with culture, excitement, and good music.

In preparation for the trip, I think everyone was stressed out. There was a lot to do in a short period of time. We needed to fill out a lot of paperwork, go to the Chinese consulate to get a Chinese Visa, and do extensive preparation of music – not to mention pack for a 3 week tour for several different climates.

I had additional stress because I felt like I needed to also prepare my body. I needed to start my iontophoresis treatments again so that my hands wouldn’t bother me playing 15 concerts in 3 weeks over in China.

I finished my initial 10 treatments just in time, right before we left. I’m happy that I did this because I barely had an issue with my hands while I was over there. I think a big reason for this though was the climate. Many cities we were in were very cold and several of the halls we played in didn’t have proper heat. Cold weather is always good for people with HH, so I wasn’t complaining.

A month after returning to the states, I performed with this same group at Carnegie Hall. I hadn’t kept up the treatments, but my hands weren’t bothering me because of the winter weather. However, Carnegie was really tough for me. I’m lucky that I remembered to bring my wash cloth on stage. I thought I’d only need it intermittently, but the stage was hot and I was holding onto it for dear life in between the notes.

Playing the flute with HH is really tough. Over this past weekend, I played a concert with my quintet and during rehearsal, my hands were so bad. I had to constantly use my towel and even had to ask if we could open a window to get some colder air circulating. It’s really frustrating when I need to concentrate on playing the right notes and all I can do is make sure I don’t drop my instrument. I feel like I’m not playing to my potential because a lot of my energy is going to just making sure my hands don’t break my instrument.

I need to start treatments again really soon. Not only for musical reasons, but because my wedding is now next month! Time flies!

HH strikes again in the most unexpected places. 2 weeks ago, I had my first dress fitting. I was having my dress pinned so it could be hemmed and the tailor asked if I could hold out the front of the dress. I did until my hands got to be too much. I actually told the tailor that I have hyperhidrosis and asked my mom to take over holding the dress. I was so scared that the sweat on my hands were going to discolor my dress! I don’t know why I bluntly told the tailor about my HH. I think it is because I figured she wouldn’t know what I was talking about, but I also got the sense that she wouldn’t care.

Also two weekends ago, I got a new phone. I upgraded from an iPhone 4s to the 6s. On this new phone, it takes your thumb print as a security code. In the store, the sales rep was asking me to type info and put my thumb print on the sensor. The whole time my hands were dripping and I was petrified that it wasn’t going to work. Thumb print scanning has failed in the past for me because of HH several times. I was also worried the sales rep would notice and I’d get embarrassed.

So, there’s always something with HH. I’m on  the subway right now typing this up on my new iPhone and I have to keep stopping to dry my hands. Scared I’ll break it or electrocute myself.

I’m going to start treatments tonight.  In the winter months, I need it less, but in general, I find continuous treatment challenging. Maybe I’m too busy, or maybe I’m just lazy. Does anyone else have trouble keeping up?

Until next time: Stay cool and dry!

Thanks for reading,

Caryn

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New Product Review: Carpe Antiperspirant Hand Lotion

Hi all,

I was recently introduced to a brand new product called Carpe. It is an antiperspirant hand lotion for sweaty hands! I received a sample of this product in the mail a few weeks ago and immediately felt results. I was recommending this product the day I tried it and I am happy to write a review for my blog!

tube

What’s great about this product is that it is a non-invasive solution for sweaty hands. It’s something you can take on the go and use as you need it. It can be used daily and will keep your hands sweat-free for hours (4+).

Carpe is an opaque white lotion with a pleasant scent. It smells like eucalyptus and mint. One of my first observations when opening the lotion was that it had a mild scent and didn’t smell like medicine. I feel like a lot of similar lotions don’t have as nice of smell.

Carpe should be applied to clean and dry hands.  You apply a pea-sized amount to your palms and rub together for 15 seconds. The lotion is pretty tacky when going on, but it disappears within the 15 seconds and leaves no residue. I was able to resume typing on my computer keyboard after the 15 seconds and did not need to rinse my hands. The lotion sunk in for a while and my hands were dry.

I find this product especially good for people with HH who have not yet explored other treatment options, children with HH, and people who have occasionally sweaty hands.  For people who  haven’t explored any other treatment options, a lotion is the perfect way to start. Carpe is sold over the counter and is very affordable. One tube costs $14.95 and will last for 1.5 months. For children with HH, I think a lotion is absolutely the way to go. Since HH is hereditary, I’ve given a lot of thought to how I will approach HH with my future children if they get my HH gene. I would not want to put them through Iontophoresis or give them Robinol until much later. Since the lotion is topical and can be reapplied throughout the day, it’s a great tool for kids at school and during after-school activities. Same goes for people who do not have HH, but have occasionally sweaty hands. The lotion is great for them because they won’t need the more intense treatments like Ionotphoresis or Robinol.

Last week, I had the pleasure of speaking with the co-creater of Carpe, David Spratte. He started working on this product when he was a senior in high school because of his frustration with sweaty hands. Now, a junior at the University of North Carolina, his product is on sale and ready to help the HH community and more! I was quite impressed to learn how much David had accomplished at such a young age and I was inspired by his story. I love that this product was created by someone who was struggling with sweaty hands himself.  He took his experiences and knowledge of sweaty hands to create a product he knew would work. David uses Carpe every day.

Something unique and special about Carpe is that long-term sweat reduction is possible if it is used regularly. David says that based on efficacy studies, 60% sweat reduction is achieved long-term if used once a day. Carpe is FDA-certified and non-irritating, so it is safe to use daily. Additionally, I was very happy to learn from David that Carpe also works on sweaty feet and foreheads. If you use the product on your feet, wait 10-15 minutes before putting on a shoe or sock to ensure the lotion sinks in.

Last, I would like to mention how much I love the name of this product. Carpe is short for Carpe Diem – Sieze the Day. David uses ‘Sieze the Moment’ on his packaging. Having this association with the lotion completely correlates to what I mention in my blog: Don’t let HH limit you and what you want to do in life. This lotion can provide  much needed relief as you face challenging and potentially embarrassing daily situations. Whether it be a handshake or highfive, playing sports or musical instruments, or simply taking a test with paper and pencil, Carpe can be a solution for you.

Please let me know if you have any questions about Carpe and please check out their website!

Thanks for reading,

Caryn

 

How My Blog Got Its Title

I started this blog three years ago with the intention of it becoming a platform to connect the HH community and a place to explain our condition in a way that was relatable to everyone – people with and without HH. To be honest, this blog started as an outlet for my growing frustrations with HH. Three years ago, I was struggling because my Robinol tablets had stopped working and I was living in very warm conditions during the summer in NYC. I was upset that there was little to no awareness for our condition and frustrated by the fact that I felt like I couldn’t talk about it because sweat is pretty much a taboo subject in our society. I didn’t think it was fair that people living with HH couldn’t feel comfortable talking openly about their condition and I felt as if we were forced to live in silent suffering. HH is a medical condition. Whether you were born with it or developed it later on in life, HH is nothing you did wrong and it’s not something you could control.

Three years ago when I was thinking of potential names and goals for this blog, I was really hitting a road block. It was not until I heard people out there say, “It’s just a little sweat, how bad can it be?”

There it was. As someone living with HH, I never wanted to hear that.

I decided that I could start a blog to explain HH in a way that showed all aspects of the impact HH has made on my life – physically, mentally, emotionally, and socially. Three years ago, there were a few medical blogs and websites about HH, but I felt the HH community (and the rest of the world!) was lacking a personal account of the everyday experiences, feelings, and encounters of someone living with this condition. I wanted to raise awareness and support for all the challenges we face and all the obstacles we overcome.

So, this is how my blog came about and it’s exactly how it got its title, Just a Little Sweat. Once you read some of the posts, dig a little deeper and spend a day in our shoes, you’ll find out that it’s anything but.

How would life be different without HH?

Sometimes I wonder how my life would be different without Hyperhidrosis.

I wouldn’t have to worry about the little things like greeting someone new with a handshake or writing with a pen on paper. I wouldn’t have to worry about holding a newspaper, either deteriorating the paper with sweat or coming away with print on my hands. I wouldn’t have to worry about holding onto a subway rail, taking change back from a cashier, accidentally touching someone’s arm with a cold and wet hand, or leaving an embarrassing hand print behind. I wouldn’t have grown up with other kids not wanting to hold my hand during square dancing in gym class or as their line partner to go to the lunch room. I wouldn’t have had to avoid certain things growing up like playing clapping games with my friends or braiding each others’ hair.

Sometimes I think about life without HH and how normal it would have been. I wouldn’t have had to be anxious about my underarm sweat stains reaching the hem of my shirt, or going to the nurse’s office several times a week just to avoid my embarrassment. Maybe I would have continued taking gymnastics lessons. Maybe I would have joined clogging dance with my sister where there is a lot of hand holding.

Life without HH seems so normal and it’s something I’ve envied for a long time. But thinking of life without HH sure has a lot of maybe’s and  what if’s.

What I do know is that I really can’t imagine my life without HH. It is a part of me and it is a part of who I have become. Without HH, I would have taken all of the above for granted. I feel fortunate that I don’t.

HH has made me a stronger person. It has given me pride in accomplishing even the smallest of tasks. HH has also made me an observer and someone who cares a lot. It has given me an understanding and appreciation for all people.

So how would life be different without HH? I’m not quite sure.
But I think life with HH has made it better.

 

Dry Grip No Sweat Lotion Interview

A couple of months ago, I suggested some over the counter treatment options for my younger cousin who also has HH. He is in middle school now and has had HH for his whole life. Out of the options I suggested, he chose to start with a lotion called Dry Grip No Sweat.

He is having great success with the product so I thought it would be a fun idea to interview him about it and his experiences with HH. A big thank you goes out to him for helping me with this post!

Here’s what he had to say:

Caryn: What do you think the hardest part of having HH is?
Cousin:
I think the hardest part of HH is having to deal with it all the time. I mean, unless it was the winter, usually my hands were sweaty. I personally had a really tough time getting used to it, and even now. I just want it to be done with.

Caryn: What difficulties do/did you find in school with HH?
Cousin: It is quite hard to cope with it at school, like when you accidentally touch someone, or when you have to pass something around and you get it really sweaty, or trying to hold a pencil but your hand keeps slipping off, it becomes annoying, and sometimes embarrassing.

Caryn: Do/did you have any difficulties with HH outside of school?
Cousin: I absolutely had troubles with it outside of school. Trying to do sporting activities was a bust, I couldn’t really touch anyone, and eventually I started to get stressed. Stressed that it wouldn’t go a way, no matter what I tried to do about it.

Caryn: How often do you apply the lotion and how does it make your hands feel?
Cousin: I apply the lotion every morning on weekdays, and at first it feels like glue because it’s sticky, but that only last for about 5 seconds. Other than that, I don’t feel it whatsoever, and often forget I put it on that morning.

Caryn: How successful do you think it has been?
Cousin: I believe it has worked quite well, but I like to think of it as brushing your teeth. It’ll only work if you consistently do it, as for most things. Now even though I’m not applying it on weekends, I just do that so my hands don’t get used to it, so I can use the same lotion for longer.

Caryn: How has your day to day life changed since using the lotion?
Cousin: My day to day life has changed for the better, no doubt about it. I hardly notice my hands sweating, and usually that’s after gym in school. I no longer have the problems I used to have in school, and I much enjoy it. It really stinks to have HH, but if you don’t do anything about it, it won’t go away.

Thanks for reading,

Caryn

 

 

Entire Medical Journal dedicated to HH

Last week, I received an email from the International Hyperhidrosis Society stating that an entire issue of the Dermatologic Clinics medical journal was dedicated completely to Hyperhidrosis! This is ground-breaking news and I wanted to learn more. The issue is found in October 2014, Volume 32, Number 4. It covers topics such as:

  • Prevalence of HH
  • Impact of HH on Quality of Life
  • Special Considerations for Children with HH
  • Topical Therapies
  • Iontophoresis
  • Botox treatments
  • Oral medications
  • ETS surgery
  • Emerging therapies
  • Resources for patients and sufferers
  • Incorporating diagnosis and treatment into Clinical Practice

You can purchase the entire issue or individual articles. This is a really exciting breakthrough for people with HH. The issue will be available to medical specialists and provide education on our condition and the latest treatments available! Just another big step in the right direction for universal awareness and understanding.

Irish Dancing Update

Hi All,

Sorry I’ve been quiet lately! I was on a family vacation on a cruise to the Western Caribbean! It was a fantastic trip and I was sad that it had to end.

Now that I’m back, I’ve been catching up with emails and work. Slowly but surely, I’ll get back in the swing of things.

I wanted to write a quick update about the team Irish step dancing class I took.

It was really fun, but I won’t be continuing. I was so anxious during class because my fingers were sweating like crazy and I had to hold hands with the other girls. We were all sweating a ton, (and it didn’t help that we were in a classroom with no air conditioning or windows!!) but I was still too self-conscious about my hands. I couldn’t relax and have fun. I was checking the clock every 5 minutes to see when class would end. It’s unfortunate because the dance part is actually pretty cool, and apparently I am needed for a competing team.

No one said anything about my hands or gave me funny looks, but I still couldn’t get past it. I’m sure you all know how I feel!

Anyway, I’m still taking 2 hours of Irish dance a week (soft and hard shoe) and love it. I’m lucky I found a dance where I can keep my hands to myself, down at my sides.

I wish HH didn’t have to be my deciding factor with something I love, but I guess I’d prefer to not be anxious and self-conscious so that’s how this one has to go.

My next goal with my partially dry hands- learn knitting! 🙂

Thanks for reading and enjoy the end of summer!

Caryn