My Secret Isn’t So Secret Anymore

For Hyperhidrosis Awareness Month this year, I had the amazing opportunity to share my story of living with Hh on a larger scale. The International Hyperhidrosis Society approached me earlier this year to ask if I would consider being a part of their Awareness Month campaign and tell my #HhStory. Although I am usually pretty secret about my condition, I decided to take the leap and trust that a video like this could help others living with Hh and spread awareness and understanding. It’s always important to me to portray Hh as NOT just a little sweat. The video really captures the struggles I’ve faced and the obstacles I’ve had to overcome to get through each and every day. My story is just one of many from millions of other Hh sufferers all over the world. You are not alone. We are in this together.

So, without further ado, here’s my story.

So, I guess my secret isn’t so secret anymore…and that’s okay.

Thank you to the International Hyperhidrosis Society for this opportunity and to my husband and mom who joined me to share their experiences of having someone with Hh in their lives.

To all my family and friends – thank you for your never-ending love and support ❤

Caryn

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Entire Medical Journal dedicated to HH

Last week, I received an email from the International Hyperhidrosis Society stating that an entire issue of the Dermatologic Clinics medical journal was dedicated completely to Hyperhidrosis! This is ground-breaking news and I wanted to learn more. The issue is found in October 2014, Volume 32, Number 4. It covers topics such as:

  • Prevalence of HH
  • Impact of HH on Quality of Life
  • Special Considerations for Children with HH
  • Topical Therapies
  • Iontophoresis
  • Botox treatments
  • Oral medications
  • ETS surgery
  • Emerging therapies
  • Resources for patients and sufferers
  • Incorporating diagnosis and treatment into Clinical Practice

You can purchase the entire issue or individual articles. This is a really exciting breakthrough for people with HH. The issue will be available to medical specialists and provide education on our condition and the latest treatments available! Just another big step in the right direction for universal awareness and understanding.

Certain Dri Giveaway!

Certain Dri Antiperspirant is a product I saw success with early on in my life. I started using it in middle school after noticing that I had a huge problem with underarm HH. My underarm sweating caused me a lot of embarrassment in school and I was very unhappy.

After using the Certain Dri roll-on, I started noticing results pretty quickly. Underarm sweating didn’t occur for three days at a time.

Continued use of Certain Dri proved 100% successful for me. I no longer suffered from sweat stains reaching the hem of my shirt and felt more comfortable wearing lighter colored shirts.

Certain Dri has greatly improved my quality of life and I recommend this product to all my readers who suffer from excessive underarm sweating.

Recently, Certain Dri found my blog and approached me because of my success with their product. They have offered a unique opportunity to you, my readers.

Thanks to Certain Dri, I have been offered a chance to host a giveaway of Certain Dri product- an antiperspirant in your choice of a roll-on or solid.

The giveaway will take place from Monday, July 8 to Wednesday, July 17.

CLICK HERE to find out more information and to enter!

Good luck!!

Caryn

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My First Experience with the Iontophoresis Device

A couple of months ago I was offered an opportunity to try an Iontophoresis machine for my Hyperhidrosis. The makers of the R.A. Iontophoresis device loaned me a prescription machine- the MD-1a Galvanic Unit! I have been working with Bill Schuler, R.A. Fischer president and long-time supporter of the International Hyperhidrosis Society, over the phone and via email for tips and coaching and updating him of my progress.

What is Iontophoresis, you ask?

Defined from the R.A. Iontophoresis website: “In cases where antiperspirants are not effective, a physician may recommend “Tap Water Iontophoresis” for treatment of palmar or plantar hyperhidrosis. In medical terms, iontophoresis is defined as the topical introduction of ionized drugs into the skin using direct current (DC).”

My first experience with this machine caused a lot of anxiety. I opened the case and saw a lot of wires and many booklets and sheets of paper with instructions.

Francis and I read through all the directions, we set up the machine and prepared the trays with tap water. This being the first time, it took us about an hour before we actually turned the machine on. I’m glad we went through everything thoroughly because I felt that the machine could be dangerous to me if something was set up incorrectly. Francis used to work for the American Red Cross and I was happy that his medical instincts took over as he carefully made sure everything was hooked up properly. He let me focus on calming my nerves. I already knew the general idea of the device as I had tried Iontophoresis about 10 years ago with no success, but this machine looked a lot more intense.

I opened the case to find that it conveniently slides apart to become two tap water trays. One metal plate rests in each tray and a cloth goes on top of the plates to avoid any direct contact with the skin. Each plate is connected by a wire to the main device where you change the level of milliamperes. The instruction booklet said that you should aim for setting the device to 12-18 milliamperes.

Finally, after making sure everything was hooked up correctly, I was ready for my first test with the device. Each of my hands rested in a tray on top of the cloth covering the metal plates. We were ready to turn the machine on.

Although I knew the machine was safe, I couldn’t help fearing that I would somehow be electrocuted and pass out once the power button was switched on. I could feel knots in my stomach and my breathing was fast. I was really nervous.

During the first treatment, Francis was responsible for working the device and changing the level of milliamperes. He counted to three and he turned the machine on.

Phew- I was okay!

Francis gradually increased the milliaperes to 12- we didn’t go any further than that on this first try.

What I noticed most was vibration. The vibration was pretty severe during my first try- vibrating my fingers, palms, wrist, and half-way up my forearm. If the sensation was getting to be too much, I asked Francis to lower the milliamperes slightly.

The vibration sensation was not painful, just a little uncomfortable.

After ten minutes, it is instructed to gradually decrease the milliamperes to 0, reverse the charge, then gradually increase again between 12-18. This lasted for another 10 minutes, and then my treatment was done for the day!

I was happy to find that the treatment wasn’t painful and that I felt safe. The treatment takes a lot of time, but I was able to watch TV during it. Watching TV also helped keep my mind off of any discomfort I felt with the vibration sensation.

I was also relieved that Francis was with me for my first treatment. He was very supportive and protective of me and made sure I was feeling okay.

After the first treatment was over, he wanted to try the machine to see what I was feeling! I let him try it very briefly, and we only went up to about 6-7 milliamperes. He could feel the vibrations from the plates.

This really showed me how much he supports me and that he was willing to step into my shoes, so to speak. His actions spoke largely about his character.

Stay tuned for another entry about my other treatments with the Iontophoresis device!

Best,

Caryn

Carrying case for the R.A. Fischer Iontophoresis device. The case comes apart to become two tap water trays for the treatments.

Carrying case for the R.A. Fischer Iontophoresis device. The case comes apart to become two tap water trays for the treatments.

The milliamperes are adjusted on this device during treatments.

The milliamperes are adjusted on this device during treatments.

During my first treatment, I treated both of my hands at the same time because Francis was adjusting the milliamperes on the device.

During my first treatment, I treated both of my hands at the same time because Francis was adjusting the milliamperes on the device.

 

Hyperhidrosis Genetics Study

This past year, I participated in a study conducted by the Albert Einstein College of Medicine on the genetics of Hyperhidrosis.

In today’s e-newsletter from the International Hyperhidrosis Society, I learned of some findings from the study. You can read the article HERE.

If you are living with HH, I encourage you to contact the College of Medicine and participate.

My experience with them was very positive. I was mailed a free kit that included a HH questionnaire and supplies for DNA samples (mouthwash samples).

After the questionnaire was complete and mouthwash samples were collected, I mailed the kit back to the Albert Einstein College of Medicine, free of charge.

It is important for your family members to also participate in the study whether they have HH or not because genetics and heredity are being tested.

Thanks for reading,

Caryn

 

Thank you!

Hi All,

I wanted to thank you for reading the article posted by the International Hyperhidrosis Society this week! This article has been a very positive experience for me and I feel like it connected the HH community even more!

Thank you for your emails, comments and supportive words. Reading through all of your messages has been very powerful and emotional.

I identify with you all your stories and am just like you- trying to live as “normal” of a life as I can with HH.

Please continue to be strong and have the courage to tell someone new about your HH today. We can all get through this together.

I hope you all enjoy your weekend and stay cool! 🙂

Best,

Caryn

I was featured by the International Hyperhidrosis Society!

I wanted to share some exciting news!

Today I was featured in an article in the International Hyperhidrosis Society eNewsletter! Sharing my HH story with others has been a really rewarding experience and I thank the International Hyperhidrosis Society for giving me the opportunity to share with so many of you!

Please click HERE to read the article.

The International Hyperhidrosis Society is a fantastic support site for people with Hyperhidrosis. They share a wealth of information including HH education, tips for coping, stories from others with HH, deals and discounts on sweat-helping products, research studies, treatment information, a comprehensive search for doctors, ways to get involved and more! I have had a really positive experience communicating with them in preparation for this article and always find their website helpful. Please check it out!

All best, and stay tuned for an entry about the Iontophoresis machine that was just donated to me from R.A. Fischer iontophoresis devices !

Caryn